Epidermolysis Bullosa (EB) is the cruellest disease known to mankind. It’s horrific it’s horrendous and is often referred to as the worst disease you’ve never heard of! Cure EB Foundation is a non-profit organisation dedicated to finding a cure and ending the pain for those affected by this rare and debilitating genetic skin condition.

EB comprises a set of rare genetic disorders affecting the skin, the body's largest organ. Those with EB lack crucial proteins that blind the skin, leading to tearing, blistering, and shearing, causing pain, disfigurement, and persistent wounds. Unfortunately, there is no cure for EB and depending on the severity often results in early death. Currently supportive care involves daily wound care, acid wash baths, bandaging, and pain management.

At Cure EB Foundation, our mission is clear – We must find a cure. Thanks to our generous supporters we are able to fund the world greatest minds in scientific research that’s looks to expedite new treatments and make advances in a finding a cure.

Visit our website: https://cureeb.org.au/

Facebook: https://www.facebook.com/CureEBAustralia 

Instagram:  https://www.instagram.com/cureebfoundation/  

TikTok: https://www.tiktok.com/@cure_eb [tiktok.com] 

YouTube: 

https://www.youtube.com/@CureEBFoundation [youtube.com] 

LinkedIn:  

https://www.linkedin.com/company/cureebfoundation